Help Anro Fight Hereditary Spastic Paralysis


We need funds take Anro to Prof Jeanine Heckmann at the Groote Schuur Hospital in Cape Town (we stay in Gauteng) to get him on clinical trials for Hereditary Spastic Paralysis a rare disease that he was diagnosed with in 2014 at the age of 17. Anro was a normal busy and healthy child upto the age of 17. In the beginning of 2014 he was still playing rugby and cricket. His dream was to become a Protea Cricket player. By September 2014 his dreams were shattered when he was diagnosed with this rare disease. At that stage the neurologist said he will be able to help Anro but not even a year later he said the medicine has no effect and we do not need to come see him again. We were devastated... In January 2016 we took Anro to another neurologist which confirmed that he have Hereditary Spastic Paralysis (HSP). I contacted the HSP foundation in America and New Zealand to see if we can get him on one of these countries clinical trials but unfortunately he can only participate in clinical trials in South Africa. This was non existent untill now. Frank Davies from the HSP foundation in America contacted me in August and said that I shoul contact Prof Jeanine Heckmann, she will be able to assist Anro to get a definite diagnoses and maybe get him on clinical trials in South Africa. Now we need your assistance to make this a reality. Please donate towards this life changing event.
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